There are so many interesting stories you learn from sitting in hospital waiting rooms day in and day out. We met many families of lung transplant patients, heart transplant patients, device patients. The stories were heartbreaking but miraculous as well.
There was one woman that I got to know very well throughout the weeks. Her husband received an artificial heart a couple weeks before Dad had been moved to that unit. There were many times that the unit would be shut down for medical emergencies and visitors were asked to leave. During those times, we would sit and talk about our different journeys with our loved ones in the hospital.
She is this little firecracker. She is 4'11" but I wouldn't dare cross her path when she is mad. That woman knows how to defend herself and she is quick with her words. There were many times that I wished I was able to respond that quickly and with such great, witty remarks.
Her husband is 6'6". He received his artificial heart just days before Christmas and was doing alright. Unfortunately, he was having issues with blood pressure and they had him on a high dose of Prop to help him. Prop cuts off blood flow to extremities in order to maintain a high enough blood pressure in your trunk. Therefore, his wife had to make the difficult decision while he was still heavily sedated and intubated, to have his one leg amputated just below the knee.
To make matters worse, he had a mild stroke and lost vision in one eye. Eventually, he was moved from the ICU unit to a regular nursing floor. He wasn't allowed to leave the hospital with the artificial heart because he literally had NO heart in his body and needed to be in a highly monitored setting. He was able to get a prosthesis and start learning to walk when...
He started to bleed excessively from the rectum and they learned that he had malignant tumors in his colon. Concerned that the cancer might have spread to the lymph nodes, they removed the tumors and a couple weeks later, went back and did a biopsy of the lymph nodes which came back negative.
He went on the heart transplant list on April 5th and was transplanted April 9th. When I finally got word from his wife that he got a heart, I could not stop smiling! Unfortunately, things didn't work out that way for my dad, but it is refreshing to know that not everyone has to suffer like we are now!
Something I didn't know before Dad went on the transplant list is this: you can't transplant a babies heart into a grown man. It isn't like the heart can grow to accomodate like other organs can. The heart needs to come from someone of comparable size and needs to be the same blood type. You can imagine how difficult it is to find a heart donor that is 6'6"-ish. In addition, while other organ transplants are up in numbers, heart donors have remained the same. Many families are able to make the decision to donate a loved one's organs after they witness the heart stop beating but can not emotionally make the decision when their loved one is only brain dead.
Though everyone's journeys through the hospital setting are always different and the outcomes are never quite the same, I feel blessed to have met those families -- especially the one talked about above. I am so anxious to get back up to the hospital and see them before the leave for home. They became a part of my reality for so long that my life feels weird without seeing them everyday. There are nurses I'd love to see too.
Part of me isn't ready though. All those rooms look the same and one of those rooms is the last place I saw my dad. I'm bound to encounter nurses who took care of my dad no matter where I walk and I'm not sure I'm ready to face it all yet. Please pray for me. Maybe it is part of the healing process by going. Maybe it will finally sink in that Dad really isn't physically here anymore and I can start the healing process. I'm not sure.
I'm not sure about my future, about where I stand in various friendships, about whether I am making sound decisions or not. I'm just unsure.
10 years ago